Public involvement, co-creation, citizen science and other methods for engaging patients and the general public benefits research studies. Working together with the public leads to new ethical considerations. In this workshop, we discuss ethics in PPI, from moral and legal perspectives.
This is the 3d workshop in the series of Patient and Public Involvement workshops for KI researchers.
Research funders and scientific journals increasingly expect researchers to involve stakeholders in research when addressing societal challenges. Patient and public involvement (PPI) can bring new insights and perspectives to increase the societal relevance of the research, and promote the dissemination and uptake of research findings. But this requires that we consider the ethical perspectives, both from moral and legal perspectives.
All KI researchers and employees interested in the topic – with or without prior experience – are welcome to participate in this workshop and networking event, where we present ethical perspectives and regulations around PPI. In this interactive workshop, you will listen to experts in ethics and PPI, as well as work together with the other workshop participants on ethical considerations and actions.
Where?
Widerströmska, 2nd floor, room John, Tomtebodavägen 18a, Campus Solna, Karolinska Institutet
Programme on Tuesday, March 25
15:00 Welcome and icebreaker
- Ulrik Kihlbom, Professor in Medical Clinical Ethics, shares a reflection on ethical perspectives on PPI.
- Per Sandin, Associate Professor in Philosophy and member of the Swedish Ethical Review Authority, presents reflections on ethical review processes when using PPI
15:40 Refreshments & networking
- Fredrik Piehl, Professor in Neurology, shares experiences from working with PPI in neurology research and the ethical issues he has encountered
16:10 Workshop: Practical work with ethical perspectives using cases
- Summary and reflections
17.00 Closing and networking opportunity
Facilitators: Lotta W Tomasson and Elin Inge, Public & Science Sweden.
Registration
Register by March 20th through this registration form.
Maximum of 50 participants. In the event of large interest, a waiting list will be created, and confirmation of attendance will be requested a few days before the event.
Save the day for the fourth workshop: 13th of May, 15:00 – 17:00, online
Contact
- Rose-Marie Karlsson, Coordinator, Research Support and External Relations, Karolinska Institutet
- Daniela Strodthoff, Coordinator, Research Support and External Relations, Karolinska Institutet
Organisers
- Research Support Office / External Engagement Office and Grants Office
- Public & Science Sweden (Vetenskap & Allmänhet)
